Wisconsin Democrats support medical marijuana Nov 17, 2009
She suffers from Ehlers-Danlos syndrome and reflexive sympathetic dystrophy, bone and joint diseases that limit movement and lead to painful muscle spasms. Marijuana eases the pain, she said. (Chippewa Falls Chippewa Herald, WI)
Medical Mystery: Brain Swelling Solved Sep 25, 2009
Author Dr. Lisa Saunders Tells How Hospital Intern Helped Bring Woman Back from Two-Month Coma. After a woman mysteriously slipped into a coma for two months, doctors worked hard to figure out a diagnosis. (CBS News -- Health)
Bone's material flaws lead to disease Aug 5, 2009
Brittle bone disease affects about one in 16,000 people worldwide, and defective collagen is implicated in many other medical conditions, including Alport syndrome (kidney disease) and Ehlers-Danlos syndrome (overly-flexible skin and joints). The broader category of protein-based diseases contains even neuronal disorders such as Alzheimer's disease. (EurekAlert!)
Penn State charity gets lift from Buckeyes, others Jul 13, 2009
Colgate started its challenge last year to benefit Ehlers Danlos Syndrome, which is a defect to connective tissue that supports skin, muscle and ligaments. Ohio State and Maryland don't lift, but have video game challenges among players for charity. (Muscatine Journal, IO)
Plano family advocates to raise awareness for genetic disease May 15, 2009
Two years ago, the Darwin family was desperate to find information and medical treatment for Ehlers-Danlos syndrome ... The month of May is designated as Ehlers-Danlos Syndrome Awareness Month by the Ehlers-Danlos National Foundation (EDNF) and the Darwin family is doing all they can to work with other parents across the country and raise awareness ... Through the National Honor Society at John Paul II High School, John helped raise about 500 with the Change for Change for Ehlers-Danlos Syndrome... (McKinney Courier-Gazette, TX)
In tough times, medical care considered a luxury Mar 7, 2009
Simple math, and a huge gamble: Pegram has a rare disorder, Ehlers-Danlos Syndrome, that in some patients can be life-threatening. "If anything happens, that's another story," Pegram told us. (CNN -- Health)
