First Clear Idea Of How Rare Bone Disease Progresses Nov 18, 2009
17, 2009) An international team of scientists, led by researchers at the University of Pennsylvania School of Medicine, is taking the first step in developing a treatment for a rare genetic disorder called fibrodysplasia ossificans progressiva (FOP), in which the body's skeletal muscles and soft connective tissue turns to bone, immobilizing patients over a lifetime with a second skeleton. See also. (Science Daily)
Bone From Blood: Circulating Cells Form Bone Outside The Normal Skeleton Aug 13, 2009
The discovery that circulating blood cells can form bone outside the normal skeleton was made while studying a rare genetic disease of misplaced bone growth, fibrodysplasia ossificans progressiva, or FOP.. Identifying circulating cells with bone-forming potential in humans has important implications for FOP, as well as more common disorders where bone is formed outside the skeleton, such as in end-stage aortic valve disease, following head and spinal cord injury, and after hip and knee... (Science Daily)
Dinner raises funds, awareness Aug 3, 2009
Close to 500 well-wishers got together Sunday night to raise money to battle fibrodysplasia ossificans progressiva, or FOP, an extremely rare condition that inexorably inhibits Snow s and Eckart s ability to move by causing bone to form in muscle and connective tissue. The group gathered at the 16th Annual Find-A-Cure IFOPA Benefit dinner and auction at the Santa Maria Elks Lodge, an event that has brought attention to the women and their condition. (Santa Maria Times)
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Fibrodysplasia ossificans progressiva immobilizes patients : North County Times - Californian 07-30-2009 ... Fibrodysplasia ossificans progressiva immobilizes patients ... Erin Danzer, 11, of Oceanside, is the only person in San Diego County who has a progressively immobilizing bone disease called fibrodysplasia ossificans progressiva. (North County Times)
Fibrodysplasia ossificans progressiva immobilizes patients Jul 29, 2009
Erin Danzer, 11, of Oceanside, is the only person in San Diego County who has a progressively immobilizing bone disease called fibrodysplasia ossificans progressiva ... That option isn't practical for Erin Danzer, 11, who has a progressively immobilizing bone disease called fibrodysplasia ossificans progressiva, or FOP. She's the only one in San Diego County so afflicted, said her mother, Lori Danzer ... Fibrodysplasia ossificans progressiva causes excessive bone growth, fusing joints, muscles... (North County Times)
Ten mystery diseases May 29, 2009
Fibrodysplasia ossificans progressiva (FOP) ... He suffered from fibrodysplasia ossificans progressiva (FOP), a rare disease affecting some 1 in 2 million people, in which the body's tendons and ligaments undergo a strange metamorphosis, essentially a transformation into bone. (CNN -- Health)
Misplaced Metamorphosis Mar 13, 2009
The study has important implications for understanding the rare genetic disorder fibrodysplasia ossificans progressiva (FOP), a condition studied by the authors who care for most of the world s 700 patients with the condition. In FOP, the body forms a second skeleton as a result of the transformation of normal muscle tissue into normal bone. (Science Daily)
