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News and Articles on HPS Syndrome
* FEATURE: Hundreds of Puerto Rican albinos live in fear of deadly pulmonary fibrosis Feb 3, 2008
But Type 1 of the so-called Hermansky-Pudlak Syndrome is particularly deadly, said Thomas Markello, who works at the medical genetics branch of the National Institutes of Health ... Her mother and father are albinos, and her father suffers from Hermansky-Pudlak. (Taipei Times, Taiwan -- World)
Puerto Rican albinos afflicted by deadly lung disease Feb 2, 2008
But Type 1 of the so-called Hermansky-Pudlak Syndrome is particularly deadly, said Dr. Thomas Markello, who works at the medical genetics branch of the National Institutes of Health ... Her mother and father are albinos, and her father suffers from Hermansky-Pudlak ... "I've had people on the phone praying, saying their faith will get them through," said Donna Appell, who founded the New York-based, Hermansky-Pudlak Syndrome Network and helped establish a Puerto Rican chapter. (North County Times)
Puerto Rico Home of Deadly Syndrome Feb 1, 2008
Puerto Rico has one of the world's highest rates of Type 1 Hermansky-Pudlak syndrome, a rare and fatal form of albinism which causes a deadly lung disease ... But Type 1 of the so-called Hermansky-Pudlak Syndrome is particularly deadly, said Dr. Thomas Markello, who works at the medical genetics branch of the National Institutes of Health ... Her mother and father are albinos, and her father suffers from Hermansky-Pudlak. (Longview Daily News, WA)
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