Aldagen files again for $81M IPO Oct 29, 2009
Aldagen also would use an unspecified amount of the IPO proceeds to fund further commercialization and development of ALD-101, which is designed to improve the restoration of normal blood cell formation following cord blood transplants in children with inherited metabolic diseases such as Krabbe disease. That product also is in phase III studies, but the U.S. Food and Drug Administration is questioning the design of one of those trials, which could lead to additional testing. (Triangle Business Journal)
Transplant May Treat Metabolic Disorders in Womb Oct 20, 2009
She and her team are studying the new procedure in a pilot trial open to pregnant women at risk for having children with fatal metabolic disorders, including Krabbe disease, metachromatic leukodystrophy, Pelizaeus-Maerzbacher disease, Tay-Sachs disease and Sandoff disease. If untreated, these metabolic disorders can lead to bone, brain and central nervous system problems, and early death, the study authors noted in a Duke news release. (MEDLINEplus)
Governor wants insurance coverage for treatment of autism Jul 11, 2009
The bill was named for 1 year-old Brady Cunningham, a southeast Missouri boy who died in April from Krabbe disease. His parents attended Wednesday's bill-signing ceremony. (Fulton Sun, MO)
Missouri family seeks more newborn testing May 12, 2009
Krabbe disease can be helped, but it must be diagnosed early ... Brady, who was born with a rare genetic condition called Krabbe disease, died April 6, 2009, just days before his first birthday, as his parents continued to fight for a new state law to get screening to identify Missouri newborns who have the disease ... Brady had been diagnosed with Krabbe disease, a rare and cureless genetic condition that left him unable to sit up, swallow or smile. (North County Times)
Missouri votes to add 5 diseases to newborn screenings May 11, 2009
The bill is named for Brady Cunningham, a southeast Missouri boy who died last month from Krabbe disease, which is one of the additional disorders that would be tested ... If Krabbe disease is diagnosed quickly, certain treatments can improve chances of a normal life. (Jefferson City News Tribune, MO)
Mills family keeps daughter's memory alive May 1, 2009
Makinley Mills died on Dec. 22, 2007, from Krabbe disease and turned her parents lives upside down. Jeremy and Dawn had never heard of Krabbe disease, a disease for which there is no cure ... The Mills now devote their lives to raising awareness of Krabbe disease and raising money for Hunter s Hope, a foundation founded by former NFL quarterback Jim Kelly, whose son, Hunter, passed away due to Krabbe leukodystrophy in 1997. (Mason City Globe-Gazette, IO)
Three Charged in Deadly Drinking Apr 1, 2009
Don't let this happen," said Kraft. Arman Partamian's parents hope others can learn from his death so that no other student will perish needlessly as Arman did. ajl/ay Print Friendly Version The passenger in a DWI-related car crash on Spencerport Road in Gates early Friday morning died of his injuries Tuesday night at Strong Hospital. New York State DOT leaders held an informational meeting Tuesday night with residents announcing a detour of sorts to the Route 531 transportation project. The... (R News)
Hall of Famer stumps for newborn testing Apr 1, 2009
The child died from symptoms of Krabbe disease. Kelly said he was staggered to learn that there is no U.S. standard for newborn testing, so requirements vary widely nationwide. (AZCentral -- News)
Route 531 Extension a No-Go Apr 1, 2009
The basic decision was made because of the lack of traffic and the need for the highway to be extended out this far," said Kevin OBuckley, NYSDOT. Instead, the DOT says the project's focus will now center around multiple location-specific improvements along the corridor that would improve safety and congestion-related delays. ajl/ay Print Friendly Version The passenger in a DWI-related car crash on Spencerport Road in Gates early Friday morning died of his injuries Tuesday night at Strong... (R News)
Wine Contest Benefits Camp Good Days Mar 30, 2009
So this is a competition and a way for them to really find out how great their wines are and compare with all the other wines of the world," said Peter Parts, Camp Good Days volunteer. The $150 a plate wine dinner is May 2. ajl ds Print Friendly Version For the third straight year, a local Christian church showed its support for the local Jewish community. The Greater Rochester Night to Honor Israel took Place at the Bethel Christian Fellowship, in Downtown Rochester. Friends and loved ones... (R News)
Fundraiser for Scleroderma Patient Mar 30, 2009
" Allen did the cooking for the benefit, which raised thousands of dollars. Related Story: - 3/27/09 ajl ds Print Friendly Version For the third straight year, a local Christian church showed its support for the local Jewish community. The Greater Rochester Night to Honor Israel took Place at the Bethel Christian Fellowship, in Downtown Rochester. Friends and loved ones spent Sunday grieving in their own ways over the loss of Joseph Mueller, 17. The Aquinas Institute senior died in a car crash... (R News)
Red Wings Tickets Go on Sale Mar 29, 2009
I thought it was exciting to do this," said Sonia Tafoya, Red Wings fan. "We had a great end of the year last year, both attendance wise and on the field, and I think people are really excited about the upcoming season," said Dan Mason, Red Wings general manager. The Red Wings home opener is Saturday, April 11 at 1:35 p.m. jmeds Print Friendly Version It was lights out at 8:30 p.m. Saturday night as people around the world observed Earth Hour. A 51-year-old man died in a farm accident in the... (R News)
Red Cross Helps in Fargo Mar 29, 2009
Everybody is working as hard as they can," said Devvie Schleyer, Red Cross volunteer. If things do get worse, Red Cross workers would have to evacuate Fargo along with its residents. jme ds Print Friendly Version It was lights out at 8:30 p.m. Saturday night as people around the world observed Earth Hour. A 51-year-old man died in a farm accident in the town of Wheatland. Boy Scouts and Girl Scouts from around the Rochester area joined forces to help the less fortunate. Forecasters in North... (R News)
Everything Happens for a Reason Mar 28, 2009
R News: As It Happens, Where It Happens. Saturday March 28, 2009. (R News)
Hunter's Ball Continues to Raise Hope Mar 28, 2009
A ball Friday night celebrated life and love of all children, especially those suffering from Krabbe Disease and other leukodystrophies ... A ball Friday night celebrated life and love of all children, especially those suffering from Krabbe Disease and other leukodystrophies. (R News)
