Daval International Awarded Orphan Drug Designation for Motor Neurone Disease Treatment Nov 9, 2009
It is derived from hyperimmune caprine serum and is currently under Phase II trialing in Europe for Scleroderma and for bladder dysfunction in Secondary Progressive Multiple Sclerosis. Both trials are expected to report in the first half of 2010. (Canada Newswire)
SPITZ: 'Fortunate' woman has rare disease Nov 1, 2009
Pulmonary hypertension is rare in all its forms, including cases associated with other diseases such as scleroderma and sickle cell anemia. Estimates on patient numbers vary. (Hudson Sun, MA)
Geneticists Hunt For Scleroderma Triggers Oct 31, 2009
30, 2009) At its most benign, the autoimmune disease scleroderma can discolor parts of the skin of its sufferers ... In all its forms, scleroderma gives Dartmouth geneticist Michael Whitfield, his graduate students, and his postdoctoral researchers a sense of urgency in their search for the triggers of the chronic condition ... In a study that the Journal of Investigative Dermatology published in its October 2009 edition, Whitfield's team reports a closer connection between a gene profile for... (Science Daily)
Cancer Drug May Help Scleroderma Oct 22, 2009
TUESDAY, Oct. 20 (HealthDay News) -- A new study suggests that the cancer drug Gleevec may benefit people with scleroderma, a chronic connective tissue disease. No effective treatment currently exists for scleroderma, which affects the skin, blood vessels and often muscles and joints, as well as the gastrointestinal tract, kidneys, heart and lungs ... About 300,000 people in the United States have scleroderma, which typically strikes people between the ages of 30 and 50, according to the... (MEDLINEplus)
Dealing with difficult health choices Oct 20, 2009
She determined Stephanie has scleroderma, a chronic disease that hardens body tissues ... The symptoms vary greatly from individual to individual, and the effects of scleroderma can range from very mild to life-threatening, according to the Scleroderma Foundation, the leading nonprofit supporter of scleroderma research in the United States ... They wouldnt cover Stephanie with scleroderma, and that was the main reason I needed the insurance. (The Herald-Mail Online)
Drug could provide first treatment for scleroderma Oct 18, 2009
Investigators have identified a drug that is currently approved to treat certain types of cancer, Gleevec, that could provide the first treatment for scleroderma, a chronic connective tissue disease for which a treatment has remained elusive ... For the study, investigators at Hospital for Special Surgery enrolled 30 patients with diffuse scleroderma, a widespread severe form of the disease, and gave them 400 mg of Gleevec per day ... "The skin score seems to be a very good marker of disease... (EurekAlert!)
Corthera heart drug lands FDA fast-track Oct 2, 2009
Corthera, formerly named BAS Medical Inc., acquired relaxin after the treatment failed a late-stage trial by Genentech spinoff Connetics Corp. as a treatment for the crippling tissue disease scleroderma. We are excited to be launching Phase III given our goal of advancing the development of Relaxin as rapidly as possible for the benefit of patients who are in need of new treatment options, Corthera CEO Stan Abel said in a press release. (San Jose Business Journal, CA)
COLUMN: Your source for dental information: Is the World Wide Web your choice? Sep 25, 2009
Dr. Leader is on the Medical Advisory Board of the New England Chapter of the Scleroderma Foundation. Loading commenting interface. (Malden Observer, MA)
The Scleroderma Foundation 1st Annual 'Fight For Lexi' Golf Tournament at the Dove Canyon Country Club on September 21, 2009 Featuring a Performance by Carlos Mencia Sep 20, 2009
Golf Tournament to Raise Funds for the Scleroderma Foundation, Southern California Chapter ... Proceeds from the event will benefit the Scleroderma Foundation/ Southern California Chapter ... The event is organized by the Pettit Family whose daughter, Lexi, was diagnosed with a rare autoimmune disease, scleroderma, in 2008 at the age of 15. (PR Newswire)
Endothelin Drugs Benefit Those With Pulmonary Hypertension Sep 16, 2009
Clinical trials have begun to use endothelin receptor antagonists to treat pulmonary hypertension, resistant arterial hypertension, proteinuric renal disease, cancer and autoimmune diseases such as scleroderma. The following are some research highlights on endothelin receptor antagonists. (Science Daily)
Barbara Lillian Potolicchio Sep 14, 2009
Norwell, MA 02061 or to the Scleroderma Foundation, Attn: Donations, 300 Rosewood Suite 105, Danvers, MA 01923. For an online guestbook, please visit www. (Hingham Journal, MA)
The Show Goes on for Pulmonary Fibrosis Patient Jerry Lewis Sep 5, 2009
Sometimes PF can be linked to a particular cause, such as certain environmental exposures, chemotherapy or radiation therapy, residual infection, or autoimmune diseases such as scleroderma or rheumatoid arthritis. However, in many instances, no known cause can be established. (PR Newswire)
Jane Burg Stange Sep 4, 2009
Jane finally found peace after many years of a difficult battle with scleroderma ... Memorials can be made to the National Scleroderma Foundation. (Chippewa Falls Chippewa Herald, WI)
Clinic expands rheumatology practice Aug 13, 2009
Northwest Rheumatology specializes in the treatment of rheumatoid arthritis, scleroderma, Sjogren s Syndrome, psoriatic arthritis, lupus and other autoimmune diseases, as well as osteoporosis and osteoarthritis. The clinic has locations at 1140 Cypress Station Drive in Northwest Houston and at 9100 Forest Crossing Drive in The Woodlands. (Houston Business Journal, TX)
Placenta-derived Stem Cells May Help Sufferers Of Lung Diseases Jul 30, 2009
17, 2008) Systemic sclerosis, also known as scleroderma, is characterized by the formation of fibrosis, or scar tissue, on internal organs as well as the skin. Beyond its disfiguring symptoms, SSc is. (Science Daily)
At your service Jul 6, 2009
Halifax Scleroderma Support Group: 386-427-3980. Heartstrings: Support group for children whose parent has cancer. (Daytona Beach News Journal -- Local)
Collin Creek Mall hosts scleroderma walk Jun 19, 2009
In honor of Scleroderma Awareness Month, the Scleroderma Foundation s Texas Bluebonnet Chapters will host the second-annual Dallas Stepping Out to Cure Scleroderma walk-a-thon on June 27 at the Collin Creek Mall ... The Mall Walk will benefit the programs and services of the Bluebonnet Chapter and help fund medical research aimed at finding the cause and cure for scleroderma ... Scleroderma is an autoimmune disease of the connective tissue. (McKinney Courier-Gazette, TX)
AIMSPRO is Awarded TGA Orphan Status for the Treatment of Amyotrophic Lateral Sclerosis Jun 1, 2009
It is derived from hyperimmune caprine serum and is currently under Phase II trialling in Europe for advanced Scleroderma and for bladder dysfunction in Secondary Progressive Multiple Sclerosis. Both trials are expected to report in the first quarter of 2010. (Canada Newswire)
Signs can be subtle for pulmonary hypertension May 5, 2009
Most folks develop pulmonary hypertension because of an underlying condition such as emphysema (destruction of the tiny alveoli lung sacs where oxygen and carbon dioxide gas exchange occurs), untreated severe sleep apnea, chronic clots, valvular problems like mitral valve narrowing, scleroderma, sarcoidosis or sickle cell disease. Rarely, folks develop pulmonary hypertension for no clear cause. (Atlanta Journal-Constitution -- Health)
She dived 314 feet with one breath Apr 15, 2009
Campbell took 2008 off when her mother died after a painful battle with scleroderma. Shes known in the sport as a natural athlete who doesnt train as hard as her fellow competitors and still beats them. (MSNBC -- Sports)
LETTERS: NCT, April 10, 2009 Apr 10, 2009
"Every morning, hail, rain or shine, I get the paper for my wife and she immediately turns to "Pickles" and then tells me how like home the various situations are. I can't see it myself, but then I think if it keeps her happy, perhaps I should carry on with the subscription.Rob SulshOceansideEveryone deserves health insuranceI want to join the rising tide of voices who are requesting an end to the incredibly expensive, bloated and inefficient health care system we have in this country. Too much... (North County Times)
Fundraiser for Scleroderma Patient Mar 30, 2009
He suffers from systemic scleroderma, a rare auto-immune disease where a person's joints, skin and internal organs slowly stiffen. Sunday, Allen's Fight '09 was held to help raise money for Allen's treatment. (R News)
Everything Happens for a Reason Mar 28, 2009
Sparrow was diagnosed with scleroderma a rare disease where the skin becomes hard and thickens ... "He's had every other kind of treatment for scleroderma. So this is our last chance here," Lowry said. (R News)
Diabetes, Parkinson's can lead to gastroparesis Mar 16, 2009
Other possible causes include Parkinson's disease, abdominal migraines, hypothyroidism, scleroderma, stomach surgery, eating disorders such as anorexia or bulimia and more. There is also a form called idiopathic gastroparesis, which simply means that no cause can be found despite extensive medical testing. (Erie Times-News, PA)
Obama opens door for scientific research Mar 13, 2009
In 1999, Woods was diagnosed with scleroderma, which is a chronic progressive autoimmune disease ... Scleroderma, meaning hard skin, causes thickening and tightening of the skin as well as damage to internal organs including lungs, heart, kidneys, esophagus and gastrointestinal involvement (GI) ... Within the first five years, 50 percent of people diagnosed with scleroderma die. (McKinney Courier-Gazette, TX)
Tumor Suppressor May Attenuate Fibrotic Disease Feb 27, 2009
26, 2009) New research reveals a critical cellular signaling pathway that is responsible for generating excess connective tissue in multiple organs, similar to what is seen in human patients with scleroderma ... "For example, human scleroderma patients, who characteristically exhibit widespread fibrosis, possess antibodies that activate PDGF receptors." ... "Our findings provide direct evidence that increased PDGFR? signaling can be sufficient to drive systemic connective tissue disease in organ... (Science Daily)
arGentis given orphan status in Europe Feb 17, 2009
Scleroderma causes thickened skin and varying degrees of organ dysfunction. The drug is in Phase II clinical trials, which means it has one more round of trials before it is ready for the marketplace. (Memphis Business Journal, TN)
Rev. Marjorie Scott; social justice advocate ministered to the disadvantaged; at 61 Feb 16, 2009
The Rev. Marjorie Scott's mission, to comfort and empower society's disadvantaged, was informed by her own struggle with scleroderma, a rare autoimmune disease ... Rev. Scott died of complications from scleroderma at the Stone Institute in Newton on Jan. 28. (Boston Globe)
Mary Sara Ronan Feb 8, 2009
Soon after starting Sara's Blue Ribbon Porkies in 2001, Mary Sara began to experience symptoms developing from her scleroderma ... If you would like to help memorialize Mary Sara, donations in her name to the National Scleroderma Foundation would be wonderful. (Helena Independent Record)
