Web video maker hopes his antics pave way to stardom Feb 19, 2008
He was born with Thrombocytopenia Absent Radii, also called TAR syndrome. He knows people either laugh or turn away in disgust, accusing him of exploiting his disability for a laugh. (Daytona Beach News Journal)
School to fight rule that short-changes disabled pupils Apr 16, 2007
A school principal, Tobias Nganbe, said Bernadette, who was born with a rare condition, tar syndrome, deserved "the very best, like all the other disabled children in Australia". Sean Bowden, a Darwin lawyer acting for the school, said the complaint would partly be based on a funding system under which large amounts of money ear-marked for schools like Wadeye are skimmed off by the Northern Territory Government. (Sydney Morning Herald -- Australia)
Duke students' invention strikes right note for disabled player Mar 15, 2006
Last semester, the teams also designed an exercise machine for a woman with cerebral palsy and a reaching assistance device for a young boy with TAR syndrome, a congenital condition characterized by abnormalities of the arms. Topel, the only member of his team who plays the guitar, was immediately drawn to the guitar strummer when the students got the project choices. (Herald Sun)